A worthy organization.
We recently heard from Tim at BrainandSpinalCord.org. It's a good organization and resource for information these kinds of injuries.
Whenever a person or family is suddenly confronted with the world-changing experience of a catastrophic spinal cord injury or brain injury, there are a host of questions but seemingly few solid answers. These questions involve a wide spectrum of issues: health, rehabilitation, hope for recovery, current research, financial, legal, and the list goes on.
Medical providers are often reluctant to give too much information based upon a legitimate concern of giving false hope. Providers are also pressed for time, making it logistically difficult for them to spend time with a new brain injury or spinal cord injury survivors and their families answering questions in detail. Moreover, there are many questions that doctors and their staff are unable to answer, including questions about pressing financial and legal issues. Support groups, government resources, and other sources of potential assistance are also difficult or impossible to easily identify.
BrainandSpinalCord.org was created as a knowledge-base for brain injury and spinal cord injury survivors to help answer these kinds of questions. While the site is relatively new, we hope to eventually have answers and information about all of the most frequently asked questions and important issues facing survivors. Our daily blog will have information about news and developments. We will have in-depth articles, links to resources, and commentary on developments in research and recovery. We are also building a video library that will have basic information that survivors need to know about. Our library will also have videos of other brian injury and spinal cord injury survivors and their families who will talk about lessons they have learned and tell their personal stories about hope and coping.
Our mission is to be the most reliable, timely and complete resource on the internet for brain injury and spinal cord injury survivors. Our hope is that this site will become relied upon as a trustworthy resource for the community and for those who are searching for information.